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Charlie Gard, British baby at heart of Legal Battle dies at 11-months

BellaNaija.com

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Charlie Gard and Parents Chris Gard and Connie Yates | Photo Credit: PA via The Guardian

Charlie Gard, a British baby, who became the subject of a bitter dispute between his parents and doctors over whether he should be taken to the U.S. for experimental treatment, has died, the Daily Mail said on Friday.

The 11-month-old baby suffered from an extremely rare genetic condition known as mitochondrial DNA depletion syndrome causing progressive brain damage and muscle weakness, and his parents’ long struggle to save him drew an international outpouring of sympathy.

“Our beautiful little boy has gone, we are so proud of you Charlie,” Connie Yates, the baby’s mother, was quoted as saying by the Daily Mail.

Great Ormond Street Hospital, where Charlie had been receiving treatment, had no immediate comment on the Daily Mail report.

After a harrowing legal battle that prompted a global debate over who has the moral right to decide the fate of a sick child, a judge on Thursday ordered that Charlie be moved to a hospice where the ventilator that keeps him alive would be turned off.

Yates and the baby’s father, Chris Gard had wanted Charlie to undergo a treatment that has never been tried on anyone with his condition before, against the advice of doctors at his London hospital who said it would not benefit him and would prolong his suffering.

Charlie required a ventilator to breathe and was unable to see, hear or swallow.

The case drew comment from U.S. President Donald Trump, who tweeted on July 3 that “we would be delighted” to help Charlie.

Also from Pope Francis, who called for the parents to be allowed to do everything possible to treat their child.

Britain’s courts, after hearing a wealth of medical evidence, ruled that it would go against Charlie’s best interests to have the experimental nucleoside therapy advocated by a U.S. professor of neurology, Michio Hirano.

The case prompted heated debate on social media and in the press on medical ethics, and staff at the Great Ormond Street Hospital which treated him received abuse and death threats.

Photo Credit: PA via The Guardian

6 Comments

  1. Diamond

    July 29, 2017 at 11:20 am

    Onyibo and issuing death threats unnecessarily.

    Rest on little one.

    • Bubu

      July 29, 2017 at 2:00 pm

      Hey Diamond, did you follow the story? The baby was born with a rare genetic condition. He had been in the hospital for 9 out of 11 months of his life, on a ventilator. The medical care in the UK had been exhausted on him and parents were seeking to take him to the US for an experimental treatment that would make little or no impact on his overall health. The UK court ruled his case as useless, that letting him off the support would be better. The same US doctors that they wanted to see sent their rep to the UK, and he ordered some tests to be done. The results of the tests showed that. The US experimental treatments would only help the baby to achieve 10% improvement on his health. Do you think 10% improvement would have any impact on his overall health? Zero impact, in my opinion. Sometimes, it is good to read and comprehend, before commenting on a topic. I have seen lots of kids like this, and it is just pure suffering for them to be bedridden and relying on ventilators just to take a breath like normal people do. Also, the parents suffer a lot of emotional and psychology trauma, just by seeing their babies being hapless and in hopeless situations. These kids suffer from a lot of diagnoses, and the physical manifestations are horrifically horrifying. You can say that they issue death threats anyhow, probably because you haven’t seen these kids or the the little angels (kids) in your life are healthy. The best decision for this little angel was
      to go rest, and feel pain no more. And, that will give the parents time to heal and the opportunity to have other (healthy) babies.

    • Comment

      July 30, 2017 at 4:56 am

      Great explanation Bubu. Sometimes people allow sentiments to get in the way of making reasonable and progressive decisions.
      The poor child is free from all the machines and tubes. The parents were probably feeling defeated and guilty that the sad reality translates to giving up on their child but not realizing that they were making their own emotions were taking center stage over and above choosing a peaceful passing over a horrible quality of life that still would pass.
      It’s a horrible thing that they had to go through and I pray God comforts them. Charlie’s innocent soul will be embraced by God, amen.

    • Justpassingby

      July 31, 2017 at 12:10 am

      @bubu’s lengthy comment makes absolutely no sense in response to Diamond’s comment.

      Perhaps you are the one that needs to comprehend before you pass comments?! Before you insult people on social media.

      How on earth does a flippant comment on death threats issued to staff of the hospital where the poor child received treatment, display support or a lack of it for the UK court’s decision?! Apples and oranges! Totally unrelated……. SMH!

  2. Ada_ugo

    July 29, 2017 at 6:37 pm

    Oh this is so sad. I only found out about his case a few days ago, so sad to see he is gone. May he rest in peace.

  3. tunmi

    July 30, 2017 at 6:09 pm

    Finally!!! The poor kid is free. I hope everyone involved is able to grieve in peace.

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